News & events

Waiting for the next Council conclusions focus on adult vaccination

EU WEBINAR - 6th December 2022 14:30 – 16:00 CET Registration link

Active Citizenship Network (ACN), is glad to invite you to the next EU WebinarWaiting for the next Council conclusions: focus on adult vaccination” on the 6th December 2022 from 14:30 – 16:00 CET. Registration link

EU health Ministers will meet later this year, under the Czech Presidency of the European Council, to discuss the European institutions' commitment to the vaccination policy. The Expert Meeting on Vaccinations, which will be held in Prague on 21 and 22 November, is an excellent opportunity to ensure that vaccines are seen as a lifelong saving rather than a cost.

Resistance:GoingFurther,AimingHigher

15 November, 11am-12.30pm CET

EuropeanParliament, Bruxelles

RoomA3E-2(hybrid event)

driving collaboration in the fight against antimicrobial resistance going further aiming higher 2

Registration link

FINAL AGENDA

Supported by Active Citizenship Network andendorsed the MEPs Interest Group on "European Patients' Rights & Cross-Border Healthcare", the European Parliamentary event titled “Driving Collaboration in the Fight against Antimicrobial Resistance: Going Further, Aiming Higher” aims to create awareness of the urgent need to leverage current EU policy developments in the fight against Antimicrobial Resistance (AMR). The hybrid event, organized by Weber Shandwick, is scheduled at the EU Parliament in Bruxelles next 15 November, 11am-12.30pm CET.

 

Active Citizenship Network is delighted to invite you to the event “Securing Equitable Patient Access to Advanced Therapies across Europe”

 that will be held on October 24th, 2022 from 16:00 to 18:00 CEST in room JAN 6Q1 at the European Parliament in Brussels

To attend the conference, please register here (registration is mandatory)

FINAL AGENDA

Kindly hosted by the Member of the European Parliament Tomislav Sokol (EPP group), co-chair of the MEPs Interest Group “European Patients' Rights and Cross-border Healthcare”, the initiative is organized by Active Citizenship Network, the EU branch of Cittadinanzattiva, with the aim of contributing to provide a multi-stakeholder vision for equitable patient access to ATMPs.

Together with European institutions, academia, healthcare professionals, citizen organizations & Patient Advocacy Groups (PAGs), the private sector and key stakeholders, we will discuss the disruptive aspects of ATMPs and pay attention to the opportunities and challenges of new advanced therapies, which are expected to increase significantly over the next decade: an encouraging but equally challenging scenario, considering the high costs and public budget constraints faced by several EU countries. Aspects that must be addressed today in order not to be unprepared tomorrow.

VaccinAction2022

7 July 2022 from 14.30 to 16.00 CEST

FINAL AGENDA

Active Citizenship Network (ACN), is glad to invite you to the next EU WebinarTowards the next Council conclusions: which role of adult vaccination?” on 7 July 2022 from 14.30 to 16.00 CEST.

As a follow-up to the Annual Meeting of the Coalition for Vaccination, and at the beginning of the Czech Semester (1 July – 31 December 2022), the initiative will allow discussion of the EU Institutions' commitment to Adult Vaccination.

What weight will the topic of vaccinations have in the Council Conclusions? How the different health stakeholders (civil society, patients, health professionals, experts, and institutions) can work together on this, and in particular what role adult vaccinations will play in the Conclusions?

vaccination2021 decembrer2021

SEE THE AGENDA and the PRESENTATIONS

Agenda and Materials

29 of September 2021 from 11.30 to 13.00 CEST
Promoting civic information to better address the collateral damage of COVID-19 on cardiovascular disease across Europe

STD 29sept Tavola disegno 1

Evidence and data collected during the pandemic outbreak show that COVID-19 has had a significant impact on patients with cardiovascular disease (CVD).

According to an extensive worldwide survey by the European Society of Cardiology (ESC), the number of heart attack patients seeking urgent hospital care has dropped by more than 50% during the COVID-19 outbreak, and this was the strongest evidence yet of the collateral damage caused by the pandemic. Fear of catching the coronavirus means even people in the midst of a life-threatening heart attack are too afraid to go to the hospital for life-saving treatment. “There has been a lack of public reassurance that every effort has been made to provide clean hospital areas for non-COVID-19 patients. Yet the risk of dying of a heart attack is much greater than that of dying of COVID-19. Moreover, cardiac death is largely preventable if patients with a heart attack come to the hospital in time to get treatment. What we are witnessing is an unnecessary loss of life. Our priority must be to stop this from happening. We must continue to save the lives we know how to save”, said ESC President Professor Barbara Casadei last June 2020. One year after, what is the situation? How have the vulnerable target groups and CVDs patients’ been treated during the pandemic? How to increase awareness of a more than just primary prevention among people? What are the lessons learned by more resilient Health Care Systems in the area of CVDs? What should we expect from the implementation of the Recovery Plans across Europe?

VaccinAction2021

SEE THE AGENDA and the PRESENTATIONS

Routine vaccinations in time of covid-19 across Europe: a multi-stakeholder evaluation

std 2021 07 20

It has been held in the framework of the cycle of Eu Webinars «Health at the heart of the future of Europe», which ACN will hold to feed the debate of the Conference for the Future of Europe and it include the presentation of the results of the Survey realized in different EU countries for the project: Protecting the value of vaccination during -and after-the COVID-19 pandemic across Europe: impact, experiences and perspectives from citizens’ and patients’ advocacy groups & relevant stakeholders.

It started by discussing the impact of Covid-19 on the new management of national immunization plans, with concrete suggestions and experiences from patients organizations, health care professionals and institutions.

This multi-stakeholder event (civil society, patients, experts, institutions) had the aim to discuss the survey results: a reflection moment, a confrontation between the involved stakeholders to understand if there are common aspects observed, good and bad practices, find proposals.

patients right to avoid pain reducing the burden of covid 19 promoting best practices across eu 

REGISTER HERE

SEE THE AGENDA

Active Citizenship Network (ACN) is glad to invite you on the 17 of June 2021 from 15.00 to 16.30 CEST to the event titled

Patients’ right to avoid pain: reducing the burden of COVID-19, promoting best practices across EU

“JOINED FOR VACCINATION”: ADDRESSING VACCINE HESITANCY AND INCREASING UPTAKE IN EU A MULTI-STAKEHOLDER PERSPECTIVE

MEPs Interest Group European Patients Rights and Cross border Healthcare Official launch 2019 2024 term

The meeting was held the 28 January 2020 inside the European Parliament (room ASP 3H1, from 16:00 to 18:00) and hosted by MEP Brando Benifei (S&D Group)

CLICK HERE TO SEE THE PROGRAMME AND THE PRESENTATIONS OF THE SPEAKERSTHE SPEAKERS' BIOGRAPHIES AND THE PICTURES OF THE EVENT

 5th february 2019 towards higher patient safety in european hospitals innovation2

The meeting was hosted by MEP Brando Benifei (S&D Group) and it was held inside the European Parliament, in room ASP 1E3, from 10:00 to 12:00 am.

CLICK HERE TO SEE THE PROGRAMME, THE SPEAKERS' BIOGRAPHIES, THE PICTURES OF THE EVENT, AND THE MINUTES.

active citizens in europe advocate for vaccination 7th november

Active Citizenship Network strongly believe that vaccination is a right and an extraordinary tool of public health, which must be known, valued, spread and used in the interests of individuals and the community. However, it is necessary to work and contribute to a proper vaccine culture. In addition, it is necessary to ensure rigor and transparency, in order to recover confidence in science.

For this reasons, after the successful event “The challenges of life-course vaccination to enhance public health protection in Europe: a multi-stakeholder approach", ACN has organized a public event to reflect, in a multi-stakeholder environment, on the commitment of EU Institutions to the topic and to produce a proposal of positioning to strengthen the cooperation among all relevant actors. It would contribute to a more integrated policies cooperation to the theme, avoiding any silos approach.

The event “Active citizens in Europe advocate for vaccination” will be held at the European Parliament on November 7th from 10:00 to 12:00 (Room PHS 01C047)

It has been hosted by the MEP David Borrelli in the framework of the MEPs Interest Group “European Patients’ Rights & Cross-Border Healthcare”.

CLICK HERE TO SEE THE PROGRAMME, THE SPEAKERS' BIOGRAPHIES, THE PICTURES OF THE EVENT, THE MINUTES, THE ACN FACTSHEET, THE EURACTIVE article on the event (EN) - (FR) 

The event has been realized thanks to the support of MSD

cross border healthcare and centers of excellence to enhance patients rights access information and innovation

Summary

Active Citizenship Network is organizing in the European Parliament on the 27 of February from 15.00 to 17:00 the meeting titled:

"Cross-border healthcare and centers of excellence to enhance patients' rights:
access, information and innovation"

CLICK HERE TO SEE THE PROGRAMME, THE SPEAKERS' BIOGRAPHIESTHE PICTURES OF THE EVENT

CLICK HERE to participate by 16th February  2018 (sorry the registration is closed!)

It will be hosted by the MEP Patrizia Toia in the framework of the MEPs Interest Group “European Patients’ Rights & Cross-Border Healthcare”. 

The initiative represents the final event of the two years of campaigning to raise awareness on cross-border healthcare titled “Patients’ rights have no borders”, realized by Active Citizenship Network thanks to the support of  Novartis.

After two years of activities across Europe, Active Citizenship Network has decided to develop it further and plan a widespread activity focused on the European Reference Networks and on patients’ rights with regard to rare or complex disease.

the challenges of life course vaccination to enhance public health protection in europe a multi stakeholder approach

Summary

Active Citizenship Network is organizing in the European Parliament on February  28 from 11:00 to 13:00 (Room ASP A1E201) the meeting titled:

"The challenges of life-course vaccination to enhance public health protection in Europe: a multi-stakeholder approach"

CLICK HERE to see the programme, the speakers'biographies,the key notes and the pictures of the event

It will be hosted by the MEP David Borrelli in the framework of the MEPs Interest Group “European Patients’ Rights & Cross-Border Healthcare”.

The event is realized thanks to the support of MSD

making visible the invisible on headache pain sharing successul experiences across europe

Active Citizenship Network, in partnership with the European Headache Alliance (EHA), organized in the European Parliament on January 24 from 10:00 to 12:00 the meeting titled:

“Making Visible the Invisible on Headache Pain: sharing successful experiences across Europe”

CLICK HERE TO SEE THE PROGRAMME and ALL THE PRESENTATIONS

It has been be hosted by the MEP Sofia Ribeiro in the framework of the MEPs Interest Group “European Patients’ Rights & Cross-Border Healthcare” .

The event has been realized thanks to the support of Teva Pharmaceuticals Europe B.V

The initiative consisted in selecting good practices and sharing them thanks to a European event focused on migraine and headache pain, taking into account the important innovations in the field of fight against pain.

 upcoming events of the meps informal interest group european patients rights and cross border healthcare join us

Three new events of the Interest group will be carried out between January and February 2018 on three major issues related to patients' rights in Europe: Headache Pain - Cross border care and centers of excellence - Vaccination. Save the dates and register!

28th june 2017 how to ensure treatments and the respect of patients time

As stated in the 7th right of the European Charter of Patients’ Rights, each individual has the right to receive necessary treatment within a swift and predetermined period of time and this right applies at each phase of the treatment.

At this time the process for Marketing Authorization (MA) consists of a set of steps and procedures to ensure the drug safety and the safeguard of citizens' health. The current rules tend to seek a balance between the protection of health and the need to give quick answers to patients who often are in urgent need to treat severe conditions. Unfortunately, this collides with approval and reimbursement times that sometimes are very, if not even too, long.

1st march 2017 exploring areas and benefits of cooperation in cross border healthcare to protect

Three years after the deadline for national transposition of the Cross-Border Healthcare Directive in Member States (2013), patient mobility for planned healthcare remains low. Relatively few patients have used the Directive to receive treatment abroad, despite the fact that the last Eurobarometer of the EU Commission (September 2015) showed that they would like to do so.

pain therapy and the degree of patient s pain

Article 8.5 of the Directive 2011/24/EU states that the degree of patient’s pain must be taken into account in the process of the cross-border healthcare treatment authorization.

Member States should have transposed the Directive into their national legislation by October 2013 and, consequently, should have put in place mechanisms to assess the patient's level of pain.Unfortunately, in the transposition process at national level only few Countries have formally recognized the importance of the assessment of the degree of patient's pain as stated in article 8.5, setting the benchmark on the implementation of the cross-border healthcare directive.

may 3rd 2016 patients rights have no borders as well as risks

Patients would access cross-border healthcare services when adequate healthcare treatments are not available in their home country, when the relative services are managed better elsewhere or when the nearest available healthcare treatment is in another Member State, as happen in the case of many border areas.
Currently, cross-border healthcare accounts for approximately 1% of the overall EU public health spending – around €10 billion per year.

According to the Special Eurobarometer 425 on “Patients’ rights in cross-border healthcare in the European Union” published in May 2015, only 5% of people living in the EU have received medical treatments in another European country in the last year. The report shows that in the majority of cases patients had not planned to benefit from cross-border medical treatment. Indeed, among these, only 2% of them received treatment in a foreign country because they had actually planned to do so, while 3% of patients needed to be treated unexpectedly when already abroad.

On behalf of the secretariat of the MEPs Interest Group "European Patients' Rights & Cross-Border Healthcare", we regret to inform you that we have to cancel the event scheduled for April 6th.

Actually, the President of the European Parliament decided to allow all the MEPs to host the meetings and events that have been already authorized and scheduled.

Indeed, is allowed the resumption of activities such as meetings and events organised by individual Members provided that they are compatible with the new security requirements and restrictions.

However, considering the current context, MEP Patrizia Toia prefers to postpone all the meetings which she had already planned in order to avoid any risk.

We apologize for this inconvenience but we are sure that you will understand that your safety is very important for us.

As soon as we reschedule the meeting we will give you all the information on it.

In the meantime, we kindly ask you to save the date of May 3rd, from 16:30 to 18:30, on your agendas. More details will come shortly.

Sorry again for the inconvenience and thanks for your understanding.​