Exploring the benefits of health data sharing for patients, healthcare systems, and medical research at the EU level

15 May 2025 | 14:30 – 16:30

Room A3H1 | European Parliament, Brussels

We have reached maximum capacity for in-person attendance, but it is still possible to join us online and watch the live event here.

 

Join Us for European Patients' Rights Day 2025!

Health data sharing is transforming healthcare, yet many people remain unaware of how their data can contribute to public health. The rapid evolution of digital technologies and artificial intelligence has opened new possibilities—but also challenges—in using health data ethically and effectively.

This year’s European Patients' Rights Day 2025 will focus on the crucial role of health data sharing in improving healthcare outcomes while ensuring transparency, security, and patient empowerment.

Key Topics:

  • The Role of the European Health Data Space (EHDS): How it is shaping the future of health data management in the EU.

  • The Benefits of data sharing: How sharing and returning health data to patients fosters transparency, patient empowerment, and better healthcare decision-making.

  • Real-world initiatives: Case studies from EU-funded projects demonstrating the value of ethical and patient-centered data sharing.

  • Security and privacy: Ensuring strong protections and clear consent processes to build public trust in data use.

Programme Overview:

  • Opening Remarks from key EU policymakers and patient rights advocates.

  • Insights into the EHDS and its role in the future of healthcare.

  • Multi-Stakeholder Roundtable: Experts from academia, patient organizations, industry, and policymakers discuss the benefits and challenges of health data sharing.

  • Final Remarks focusing on policy recommendations

Read more here and here

For more information, write to This email address is being protected from spambots. You need JavaScript enabled to view it.

Media Partners:

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The initiative is realized in the framework of:

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The FACILITATE project has received funding from the Innovative Medicines Initiative 2 Joint Undertaking (JU) under grant agreement No 101034366. The JU receives support from the European Union’s Horizon 2020 research and innovation programme and EFPIA.