News & events

VaccinAction2021

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Active Citizenship Network(ACN) is glad to invite you on the 20 of July 2021 from 14.30 to 16.00 CEST to the event titled

Routine vaccinations in time of covid-19 across Europe: a multi-stakeholder evaluation

std 2021 07 20

It will be held in the framework of the cycle of Eu Webinars «Health at the heart of the future of Europe», which ACN will hold to feed the debate of the Conference for the Future of Europe and it will include the presentation of the results of the Survey realized in different EU countries for the project: Protecting the value of vaccination during -and after-the COVID-19 pandemic across Europe: impact, experiences and perspectives from citizens’ and patients’ advocacy groups & relevant stakeholders.

It will start by discussing the impact of Covid-19 on the new management of national immunization plans, with concrete suggestions and experiences from patients organizations, health care professionals and institutions.

This multi-stakeholder event (civil society, patients, experts, institutions) has the aim to discuss the survey results: a reflection moment, a confrontation between the involved stakeholders to understand if there are common aspects observed, good and bad practices, find proposals.

TO REGISTER & PARTICIPATE, CLICK HERE

Active Citizenship Network (ACN) is glad to invite you on the 29 of September 2021 from 11.30 to 13.00 CEST to the event titled 
Promoting civic information to better address the collateral damage of COVID-19 on cardiovascular disease across Europe

 

Evidence and data collected during the pandemic outbreak show that COVID-19 has had a significant impact on patients with cardiovascular disease (CVD).

According to an extensive worldwide survey by the European Society of Cardiology (ESC), the number of heart attack patients seeking urgent hospital care has dropped by more than 50% during the COVID-19 outbreak, and this was the strongest evidence yet of the collateral damage caused by the pandemic. Fear of catching the coronavirus means even people in the midst of a life-threatening heart attack are too afraid to go to the hospital for life-saving treatment. “There has been a lack of public reassurance that every effort has been made to provide clean hospital areas for non-COVID-19 patients. Yet the risk of dying of a heart attack is much greater than that of dying of COVID-19. Moreover, cardiac death is largely preventable if patients with a heart attack come to the hospital in time to get treatment. What we are witnessing is an unnecessary loss of life. Our priority must be to stop this from happening. We must continue to save the lives we know how to save”, said ESC President Professor Barbara Casadei last June 2020. One year after, what is the situation? How have the vulnerable target groups and CVDs patients’ been treated during the pandemic? How to increase awareness of a more than just primary prevention among people? What are the lessons learned by more resilient Health Care Systems in the area of CVDs? What should we expect from the implementation of the Recovery Plans across Europe?

patients right to avoid pain reducing the burden of covid 19 promoting best practices across eu 

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Active Citizenship Network (ACN) is glad to invite you on the 17 of June 2021 from 15.00 to 16.30 CEST to the event titled

Patients’ right to avoid pain: reducing the burden of COVID-19, promoting best practices across EU

“JOINED FOR VACCINATION”: ADDRESSING VACCINE HESITANCY AND INCREASING UPTAKE IN EU A MULTI-STAKEHOLDER PERSPECTIVE

MEPs Interest Group European Patients Rights and Cross border Healthcare Official launch 2019 2024 term

The meeting was held the 28 January 2020 inside the European Parliament (room ASP 3H1, from 16:00 to 18:00) and hosted by MEP Brando Benifei (S&D Group)

CLICK HERE TO SEE THE PROGRAMME AND THE PRESENTATIONS OF THE SPEAKERSTHE SPEAKERS' BIOGRAPHIES AND THE PICTURES OF THE EVENT

 5th february 2019 towards higher patient safety in european hospitals innovation2

The meeting was hosted by MEP Brando Benifei (S&D Group) and it was held inside the European Parliament, in room ASP 1E3, from 10:00 to 12:00 am.

CLICK HERE TO SEE THE PROGRAMME, THE SPEAKERS' BIOGRAPHIES, THE PICTURES OF THE EVENT, AND THE MINUTES.

active citizens in europe advocate for vaccination 7th november

Active Citizenship Network strongly believe that vaccination is a right and an extraordinary tool of public health, which must be known, valued, spread and used in the interests of individuals and the community. However, it is necessary to work and contribute to a proper vaccine culture. In addition, it is necessary to ensure rigor and transparency, in order to recover confidence in science.

For this reasons, after the successful event “The challenges of life-course vaccination to enhance public health protection in Europe: a multi-stakeholder approach", ACN has organized a public event to reflect, in a multi-stakeholder environment, on the commitment of EU Institutions to the topic and to produce a proposal of positioning to strengthen the cooperation among all relevant actors. It would contribute to a more integrated policies cooperation to the theme, avoiding any silos approach.

The event “Active citizens in Europe advocate for vaccination” will be held at the European Parliament on November 7th from 10:00 to 12:00 (Room PHS 01C047)

It has been hosted by the MEP David Borrelli in the framework of the MEPs Interest Group “European Patients’ Rights & Cross-Border Healthcare”.

CLICK HERE TO SEE THE PROGRAMME, THE SPEAKERS' BIOGRAPHIES, THE PICTURES OF THE EVENT, THE MINUTES, THE ACN FACTSHEET, THE EURACTIVE article on the event (EN) - (FR) 

The event has been realized thanks to the support of MSD

cross border healthcare and centers of excellence to enhance patients rights access information and innovation

Summary

Active Citizenship Network is organizing in the European Parliament on the 27 of February from 15.00 to 17:00 the meeting titled:

"Cross-border healthcare and centers of excellence to enhance patients' rights:
access, information and innovation"

CLICK HERE TO SEE THE PROGRAMME, THE SPEAKERS' BIOGRAPHIESTHE PICTURES OF THE EVENT

CLICK HERE to participate by 16th February  2018 (sorry the registration is closed!)

It will be hosted by the MEP Patrizia Toia in the framework of the MEPs Interest Group “European Patients’ Rights & Cross-Border Healthcare”. 

The initiative represents the final event of the two years of campaigning to raise awareness on cross-border healthcare titled “Patients’ rights have no borders”, realized by Active Citizenship Network thanks to the support of  Novartis.

After two years of activities across Europe, Active Citizenship Network has decided to develop it further and plan a widespread activity focused on the European Reference Networks and on patients’ rights with regard to rare or complex disease.

the challenges of life course vaccination to enhance public health protection in europe a multi stakeholder approach

Summary

Active Citizenship Network is organizing in the European Parliament on February  28 from 11:00 to 13:00 (Room ASP A1E201) the meeting titled:

"The challenges of life-course vaccination to enhance public health protection in Europe: a multi-stakeholder approach"

CLICK HERE to see the programme, the speakers'biographies,the key notes and the pictures of the event

It will be hosted by the MEP David Borrelli in the framework of the MEPs Interest Group “European Patients’ Rights & Cross-Border Healthcare”.

The event is realized thanks to the support of MSD

making visible the invisible on headache pain sharing successul experiences across europe

Active Citizenship Network, in partnership with the European Headache Alliance (EHA), organized in the European Parliament on January 24 from 10:00 to 12:00 the meeting titled:

“Making Visible the Invisible on Headache Pain: sharing successful experiences across Europe”

CLICK HERE TO SEE THE PROGRAMME and ALL THE PRESENTATIONS

It has been be hosted by the MEP Sofia Ribeiro in the framework of the MEPs Interest Group “European Patients’ Rights & Cross-Border Healthcare” .

The event has been realized thanks to the support of Teva Pharmaceuticals Europe B.V

The initiative consisted in selecting good practices and sharing them thanks to a European event focused on migraine and headache pain, taking into account the important innovations in the field of fight against pain.

 upcoming events of the meps informal interest group european patients rights and cross border healthcare join us

Three new events of the Interest group will be carried out between January and February 2018 on three major issues related to patients' rights in Europe: Headache Pain - Cross border care and centers of excellence - Vaccination. Save the dates and register!

28th june 2017 how to ensure treatments and the respect of patients time

As stated in the 7th right of the European Charter of Patients’ Rights, each individual has the right to receive necessary treatment within a swift and predetermined period of time and this right applies at each phase of the treatment.

At this time the process for Marketing Authorization (MA) consists of a set of steps and procedures to ensure the drug safety and the safeguard of citizens' health. The current rules tend to seek a balance between the protection of health and the need to give quick answers to patients who often are in urgent need to treat severe conditions. Unfortunately, this collides with approval and reimbursement times that sometimes are very, if not even too, long.

1st march 2017 exploring areas and benefits of cooperation in cross border healthcare to protect

Three years after the deadline for national transposition of the Cross-Border Healthcare Directive in Member States (2013), patient mobility for planned healthcare remains low. Relatively few patients have used the Directive to receive treatment abroad, despite the fact that the last Eurobarometer of the EU Commission (September 2015) showed that they would like to do so.

pain therapy and the degree of patient s pain

Article 8.5 of the Directive 2011/24/EU states that the degree of patient’s pain must be taken into account in the process of the cross-border healthcare treatment authorization.

Member States should have transposed the Directive into their national legislation by October 2013 and, consequently, should have put in place mechanisms to assess the patient's level of pain.Unfortunately, in the transposition process at national level only few Countries have formally recognized the importance of the assessment of the degree of patient's pain as stated in article 8.5, setting the benchmark on the implementation of the cross-border healthcare directive.

may 3rd 2016 patients rights have no borders as well as risks

Patients would access cross-border healthcare services when adequate healthcare treatments are not available in their home country, when the relative services are managed better elsewhere or when the nearest available healthcare treatment is in another Member State, as happen in the case of many border areas.
Currently, cross-border healthcare accounts for approximately 1% of the overall EU public health spending – around €10 billion per year.

According to the Special Eurobarometer 425 on “Patients’ rights in cross-border healthcare in the European Union” published in May 2015, only 5% of people living in the EU have received medical treatments in another European country in the last year. The report shows that in the majority of cases patients had not planned to benefit from cross-border medical treatment. Indeed, among these, only 2% of them received treatment in a foreign country because they had actually planned to do so, while 3% of patients needed to be treated unexpectedly when already abroad.

On behalf of the secretariat of the MEPs Interest Group "European Patients' Rights & Cross-Border Healthcare", we regret to inform you that we have to cancel the event scheduled for April 6th.

Actually, the President of the European Parliament decided to allow all the MEPs to host the meetings and events that have been already authorized and scheduled.

Indeed, is allowed the resumption of activities such as meetings and events organised by individual Members provided that they are compatible with the new security requirements and restrictions.

However, considering the current context, MEP Patrizia Toia prefers to postpone all the meetings which she had already planned in order to avoid any risk.

We apologize for this inconvenience but we are sure that you will understand that your safety is very important for us.

As soon as we reschedule the meeting we will give you all the information on it.

In the meantime, we kindly ask you to save the date of May 3rd, from 16:30 to 18:30, on your agendas. More details will come shortly.

Sorry again for the inconvenience and thanks for your understanding.​

Article 8.5 of the Directive 2011/24/EU states that the degree of patient’s pain must be taken into account in the process of the cross-border healthcare treatment authorization.

Member States should have transposed the Directive into their national legislation by October 2013 and, consequently, should have put in place mechanisms to assess the patient's level of pain.

In practice, do the National implementation measures include a reference to the intensity of pain? Do the medical records have now specific sections dedicated to the patient's pain assessment? How common is pain measurement in the EU Member States? According to the intensity of pain, do patients receive any medical advice from their doctors about which foreign leading facility is more appropriate for them? Are the National Contact Point able to refer patients to specialized centers in their own country or abroad?

medical travel

Medical travel is a term used to indicate traveling for medical care. In its primary meaning, it is intended as the patients' search for specialized treatments, surgeries or rehabilitation programs in high-level hospitals with qualified personnel and innovative technologies. The term is also used when healthy patients decide to travel to wellness/SPA resorts with the motivation to improve their health, as well as when they choose to reach the so-called "medicalized wellness centers" for services that may range from check-up to rehabilitation or home care.

iG launch

Strengthen the protection of patients’ rights in the European framework, thanks to the cooperation between civic society, patient organizations and the Members of the EU Parliament. This is one of the aims of the Interest Group “European Patients' Rights & Cross-Border Healthcare” that has been officially launched on December 2nd in Brussels at the European Parliament. Hosted by MEP David Borrelli, the co-founder of the Interest Group, the meeting was attended, among others, by MEPs Therese Comodini Cachia (Malta), Piernicola Pedicini (Italy), Elena Gentile (Italy), Marju Lauristin (Estonia).

“Patients' rights are non-negotiable and universal values that must be guaranteed to all the European citizens”
Launched today the  MEPs Interest Group on “European Patients' Rights and Cross-border Healthcare”

Civic society and patient organizations together with the Members of the EU Parliament to strengthen the protection of patients’rights in the European framework. This is the aim of the newInterest Group on “European Patients' Rights and Cross-border Healthcare”, presented today in the European Parliament by MEP David Borrelli, Co-Chair EFDD Group & Co- Founder of the Interest Group and Antonio Gaudioso, Secretary General of the Italian NGO Active Citizenship Network-Cittadinanzattiva. 

Join our live streaming coverage at the following link: https://youtu.be/Lne5liS1pKA

Your presence is important to us, as it is reaching out and sharing our efforts and goals to protect patients’ rights.

Download the event Programme and join us!